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Kool Kid Alliance
Supporting kids with KDVS
P.O. Box 928
Arden, NC 28704
828.333.7453

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KOOL WHERE

Where to find resources & information

 
 




You might also find information on the diagnosis or management of Koolen-de Vries syndrome in Educational resources and Patient support.

Read more about genetic testing, particularly the difference between clinical tests and research tests


What if I still have specific questions about Koolen-de Vries syndrome?


Some questions you could ask the Genetic and Rare Diseases Information Center.


Where can I find general information about genetic conditions?

 
 






In Supportive Memory

Jesse Loef

 
 

Where you can find information about diagnosis or management of Koolen-de Vries syndrome?

These resources address the diagnosis or management of Koolen-de Vries syndrome

You might also find information on the diagnosis or management of Koolen-de Vries syndrome in Educational resources and Patient support.

Read more about genetic testing, particularly the difference between clinical tests and research tests

 
 

















Rare Disease Day

2/29/16

Nation Wide Event


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2016 Gathering info 

Coming soon


 


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Koolen-de Vries Syndrome Awareness Day

7/17/2016

 World Wide Event



Planning a Koolen-de Vries Syndrome event? 

Tell us and we will help spread the word

 
 

Check out this link to learn one family's experience and helpful information

 
http://www.dartmouth-hitchcock.org/news/newsdetail/64223/

FAQ's INFORMATION GATHERED FROM

The United States National Library of Medicine, operated by the United States federal government, is the world's largest medical library. Located in Bethesda, Maryland, the NLM is an institute within the National Institutes of Health. 

The resources on this site should not be used as a substitute for professional medical care or advice. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.