What if I still have specific questions about Koolen-de Vries syndrome?
Some questions you could ask the Genetic and Rare Diseases Information Center.
Where can I find general information about genetic conditions?
These links provide additional genetics resources that may be useful.
In Supportive Memory
Where you can find information about diagnosis or management of Koolen-de Vries syndrome?
These resources address the diagnosis or management of Koolen-de Vries syndrome
Nation Wide Event
2016 Gathering info
World Wide Event
Planning a Koolen-de Vries Syndrome event?
Tell us and we will help spread the word
Check out this link to learn one family's experience and helpful information