Vice President/Co-FounderStephanie Needham worked in Asheville as a General Manager of Chili’s Bar and Grill for 15 years. With her business acumen and as a mother of a Kool Kid, Stephanie is dedicated to making the difficult journey easier for Kool Families through emotional, mental, and financial support.
During her pregnancy with Austin and his twin sister, Stephanie spent two months on bed-rest due to complications with the pregnancy. When the twins were born in 2005, Austin had many health issues, including a cleft lip and palate. In 2011 Austin was diagnosed with 17q21.31 Microdeletion Syndrome (now known as Koolen-de Vries Syndrome). Stephanie and Ted attended their first Kool Kid gathering in 2013 where they met kids like Austin and their families and realized they were not alone on their journey. In July 2015, Stephanie and Ted hosted the KDVS gathering in Asheville, bringing together over 60 families and researchers/doctors from around the world to learn about and support Kool Kids. Stephanie believes that, “these kids, with their incredible personalities and their smiles, make it all worth it”.
Stephanie and Ted Needham live in Asheville, North Carolina with her three children, their four dogs, two cats, and a rabbit. Stephanie also has a son and a grandson who live in California.
Mary Bridget O’Keefe Green (“Bridge”)
Board Member Director of Fund Raising
Erin has always found joy in helping others and found her true calling when she started working with developmentally challenged children in a special education classroom. She is passionate about the vision and mission of Kool Kid Alliance.
Erin graduated from The University of the Pacific with a bachelor’s degree in liberal studies with a concentration in special education. She is currently working on her teaching credentials and master’s in education with a concentration in special education. Erin lives in California with her husband and their two year old son.
Diana Heuerman Giffin
Manager Of Media
Manager of Fundraising